NHS England are looking at how people are cared for if they have a heart probelm they are born with. They are looking at the whole journey from your parents finding out before your born - right through to adult services! A whole lifetime!!
There are likely to be some changes in the future as they want to create a first class service that can meet the needs of everyone.
It's really important that you know about this and know how to get involved and have your say.
You can email NHS England and tell them what is important to you
There will be some meetings later this year where you can all meet up together. You will get the oppurtunity to understand what they think should happen and to have your say
Keep watching this space for updates about meetings