We tell the Hospital what we like and don't like

We are able to tell the hospital what we like and don't like about the care we receive.  We told them we would like to be able to contact the Nurse Specialist by mobile phone.  They have now set up a new service where we can text the nurse ourselves.  This means we can ask her questions that we probably wouldn't feel comfortable doing in front of our parents/carers.  Click here to find out more.

We told them we would like to meet other young people who are growing up with a heart problem.  We now have our own Cardiac Youth Forum which meets about 6 times a year.

We wanted our own website and here it is!  We hope you like it.  If you are a youth forum member you can post messages to each other by clicking here

Website designed and developed by webanywhere